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Last updated: Oct. 12, 2002
BIOCHEMICAL, ENDOCRINE & METABOLIC
Gaucher Disease
http://www.ninds.nih.gov/health_and_medical/disorders/gauchers_doc.htm
Health Research Institute-Pfeiffer Treatment Center
http://www.hriptc.org/HRI.html
Lowe Syndrome Association, Inc.
http://www.medhelp.org/lowesyndrome/
CONGENITAL
Cornelia de Lange Syndrome Foundation
302 West Main Street, # 100 Avon, CT 06001 860-676-8166 800-753-CdLS or 800-223-8355 860-676-8337(FAX) cdlsintl@iconn.net
http://www.cdlsoutreach.org
CRANIOFACIAL
The National Craniofacial Association
P. O. Box 11082 Chattanooga, TN 37401
800-332-2373
faces@mindspring.com
http://www.faces-cranio.org
EATING & FEEDING
GENETIC
Autism Autoimmunity Project
(973)299-9162
http://www.gti.net/truegrit/
Autism Genetic Resource Exchange
http://www.agre.org
Autism Research Institute
619-281-7165
http://www.autism.com/ari
Autism Society of America
(800) 3-AUTISM
http://www.autism-society.org/
Cure Autism Now (CAN)
(323)549-0500
http://www.canfoundation.org
Down Syndrome
http://home.epix.net/~mcross/down-syn.html
Families for Effective Autism Treatment (FEAT)
http://www.feat.org
Health Research Institute-Pfeiffer Treatment Center
http://www.hriptc.org/HRI.html
Lowe Syndrome Association, Inc.
http://www.medhelp.org/lowesyndrome/
National Alliance for Autism Research (NAAR)
888-777-NAAR
Progressive Academic Learning System (For Autism)
http://www.aspennj.org/
South Carolina Autism Society
652 Bush River Road, Suite 203
Columbia, SC 29210
803-750-6988 or 800-438-4790
Fax 803-750-8121
http://www.scautism.org
The M.I.N.D.(Medical Investigation of Neurodevelopmental Disorders) Institute
University of California-Davis
(888)883-0961
http://mindinstitute.ucdmc.ucdavis.edu
UNLOCKING AUTISM
http://www.Littleangels.org
Unlocking Autism Association
http://www.unlockingautism.org
HEARING AND VISUAL IMPAIRMENT
DB-LINK, The National Information Clearninghouse on Children who are Deaf-Blind
Email: dblink@tr.wou.edu
Web: http://www.tr.wou.edu/dblink/
DEAF AWARENESS VACATION
The Sunset Cruise Agency founded 1997 by a
deaf, licensed agent, Terzino Bomprezzi
http://www.deafcruises.com
or contact thru email at cruise2@bellsouth.net
Deaf Digest
http://www.deafdigest.com
Georgia P.I.N.E.S. Atlanta Area School for the Deaf
http://www.doe.k12.ga.us/stateschools/stateschools.asp
Helen Keller National Center for Deaf-Blind Youth and Adults
http://www.helenkeller.org/national/index.htm
NFSS Communications (Products for the deaf and blind)
http://www.nfss.com
Silent News
http://www.silentnews.com
United TTY Sales and Service (UTSS)...."The Assistive Technology
Experts"
www.UnitedTTY.com
GASTROINTESTINAL (STOMACH, BOWEL, LIVER, BILIARY)
Children's Liver Alliance
http://www.livertx.org
Alagille Syndrome Alliance
http://my.athenet.net/~luxhoj/Alagillesyndrome.html
HEART
HEMATOLOGICAL/(BLEEDING DISORDERS)
Sickle Cell Anemia
http://www.wellnessweb.com/masterindex/sicklecell/about_sicklecell.htm
LUNGS
MUSCULOSKELETAL (BONES, JOINTS, CONNECTIVE TISSUE)
Muscular Dystrophy Family Foundation
2330 North Meridian Street Indianapolis, Indiana 46208-5730
(317) 923-MDFF(6333); (800) 544-1213 (317) 923-6334 Fax mdff@mdff.org
http://www.mdff.org
NEUROLOGICAL (BRAIN/NERVOUS SYSTEM)
Brain Injury Association of Georgia
P.O.Box 2650
Decatur, GA 30031-2650
http://www.braininjuryga.org
Woodrow Leake, leake2@worldnet.att.net
Phone:404-603-1477
Fax: 404-603-1476
Cerebral Palsy Hope Through Research
http://www.ninds.nih.gov/health_and_medical/pubs/cerebral_palsyhtr.htm
Epilepsy Rap The Chatroom for Young People
http://www.efa.org
The Amyotrophic Lateral Sclerosis Association
http://www.alsa.org
The Epilepsy Foundation of Georgia
http://www.epilepsyga.org
Sturge-Weber Foundation Website
http://www.sturge-weber.com
ORTHOPEDIC/BONE DISORDERS
NIH Osteoporosis and Related Bone Diseases~National Resource Center web site.
http://www.osteo.org
SPEECH IMPAIRMENT
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